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RSD in Motion

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Our organization is successful when all areas of the RSD world are pushing for pain free lives - take a stand and help make our world better for families affected by RSD.

STOP! Don't worry - this isn't another site, with another boring presentation on this boring, rare disease. We want this experience to be impacting and bursting with energy and passion about RSD. Do you fit the description of someone eager to help? Check out your options! The three focus points that RSD in Motion is focused on include awareness, outreach and support. There are many brainstorms and dreams coming from families and RSDers young and old. Jordan, the founder of RSD in Motion, has put together a PowerPoint presentation on her experience with RSD and how she, after two and a half years, became a "survivor" of the RSD flame. In association with Dr. Jennifer Doble, they have put together a presentation that includes the myriad of treatment options that she tried and what multidisciplinary format worked for her. We would love to come and present this PowerPoint on starting a teen pain program to treat youth with RSD to you and your team. Write to us at our e-mail address at RSDinMotion@hotmail.com and we will be in contact with you as soon as possible! National Conference Idea - We need your imput! RSD in Motion's Michigan team would like to host a regional or national conference for health professionals of any stature, people affected by RSD and their families. We would like to hold this at a conference or retreat center that is capable of lodging upwards of 200 participants for a long weekend (beginning Friday afternoon until Sunday afternoon is our goal). We hope that this will be a time for health professionals to meet RSD affected families and see what needs to change in their field but also for families and RSDers to get together and talk about their story and their successes. On a different twist, we would like to host a conference/camp experience for health professionals/RSD families. Our dream is to have a week long camping experience for RSD families in Northern Michigan at a large conference and camp center. We would like to have different health professionals come in and spend a few days at a time with people affected with RSD, getting to know them on a personal level as opposed to a patient. There is an adult guest lodge that houses 20 guests at a time. This will be reserved for whatever health professional group is attending their overnight conference. We would like to invite other health professionals to spend the day with the "campers" to get to know them the entire week until their session to stay in the lodge comes up. We know that this idea is out there, different and probably unlike any other conference any heath professional has ever attended, but we hope that the extended invitation will go out to every single doctor, physical therapist, psychologist, psychiatrist, nurse, occupational therapist, and physicians assistant in the entire state of Michigan and yields many who are eager and open minded to the idea. For both of these HUGE ideas we need several things to come from any and everyone before any planning takes place. Please give us this gift of fifteen minutes of your time and fill out this thoughts, ideas and changes sheet so that we can get a general idea on how this would impact you. We invite anyone to fill this out, health professional, family member, RSDer, general public, etc. Thank you for your interest in our crazy ideas! Click here to imput your thoughts on RSD in Motion's Confrence ideas and brainstorm!		RSD: Some Clinical Guidelines from the RSDSA Join our discussion on RSD treatment! We have started a special group especially for those heath professionals who are treating kids, teens and adults with RSD. This post is created for health professionals to discuss treatment options for RSD and help to understand what your patient and their family is going through. We encourage every health professional to join this group so that they may better serve the world of RSD. Click on the link for an application to join this team. When applying, please include what field of medicine you work with, your title, and if you have worked with people with RSD previously. Join Our Medical Discussion on RSDThis group is especially for health professionals only
		This is a call to all health professionals! Do you love what we are doing? Do you want to sit on an advisory board? We invite doctors of any field, nurses, physician assistants, postdoctoral fellows, occupational therapists, physical therapists, speech therapists and nurse’s aids to join us. When we present to other health care providers, it helps us if we are aided, represented or backed up by someone who has the letters after their name to provide the credentials for our material. We are inspired to make a change but we include moms, dads, students in college and some of us are even teens who can't do too much without ten years of training behind us. Help us to gain respect so that our passion and drive to change is worth pushing. Contact us immediately with questions, dedication or lukewarm interest!