As a little kid, I knew others who wanted to be Superman, Spiderman or Batman. Some of those children have grown up and still have a passion to change the world. To all of the super heroes in the world, young and old, choose your mission and COMMIT to making a difference:

BIG Projects

Start a Team in Your Area
Would you like to help RSD in Motion by representing a state through organizing fundraisers, setting up support groups and attracting media attention to Reflex Sympathetic Dystrophy?  Contact us today and we would love to set up a team in your area!  If your state is already listed and you are interested, that's okay, we would like to see representatives throughout the state.  Please contact us today: rsdinmotion@hotmail.com!

Lend a Hand at Cleveland's Up Coming Walk-a-thon
As soon as a date has been set in June 2007, we will begin to accept volunteers for our first walk-a-thon benifiting the RSDSA and RSD in Motion, with funds going to research and other RSD causes. Contact Colleen at RSDinMotionOH@hotmail.com for more information!

Volunteering as a Health Professional

This is a call to all health professionals! Do you love what we are doing? Do you want to sit on an advisory board?  We invite doctors of any field, nurses, physician assistants, postdoctoral fellows, occupational therapists, physical therapists, speech therapists and nurse’s aids to join us. When we present to other health care providers, it helps us if we are aided, represented or backed up by someone who has the letters after their name to provide the credentials for our material.  We are inspired to make a change but we include moms, dads, students in college and some of us are even teens who can't do too much without ten years of training behind us.  Help us to gain respect so that our passion and drive to change is worth pushing.  Contact us immediately with questions, dedication or lukewarm interest! RSDinMotion@hotmail.com


Only Have Ten Minutes??

The Crazy Camp Idea - We Need Your Input!

RSD in Motion's Michigan team would like to host a regional or national camp for youth affected by RSD and their families! We would like to hold this at a conference or retreat center that is capable of lodging upwards of 200 participants for somewhere between a long weekend and two weeks! This may be a grand idea of spectacular endeavor, but missing out on summer camp can be difficult for kids and teens alike. Through this camp idea, we hope that this will be a time for a relaxing escape from the medical world. We hope to invite health professionals to meet RSD affected families to get together, getting to know them on a personal level as opposed to a patient. We hope, also, that this view may provide insight to everyone and time to breathe!


We know that this idea is probably unlike any other conference or "camp" any heath professional has ever attended, but we hope that the extended invitation will go out to every single doctor, physical therapist, psychologist, psychiatrist, nurse, occupational therapist, and physicians assistant in the entire state of Michigan and yields many who are eager and open minded to the idea. For this HUGE idea we need several things to come from any and everyone before any planning takes place. Please give us this gift of fifteen minutes of your time and fill out the Thoughts, Ideas and Changes sheet so that we can get a general idea on how this would impact you. We invite anyone to fill this out, health professional, family member, RSDer, general public, etc. Thank you for your interest in our crazy ideas!

Click here for our Opinion's sheet regarding our crazy ideas!


Medium Projects

Start a Support Group in Your Area
We would love to see support groups meet in person across the country! Currently, we are working on forming support groups in: Ann Arbor, Michigan. If you would like to help start a RSD in Motion support group in your area. Contact us immediately! If you would like to see a support group started in your town, but can't pledge the commitment, please e-mail us at
RSDinMotion@hotmail.com. We will set you up with all of the materials you need, including contact information for local RSDers interested in joining!

Tell the World About RSD
There are not many people who understand or know what RSD is. We are out to tell the world! Know someone who should know more about RSD? Did you just accomplish something huge in spite of RSD? Send this information to teachers, family, friends, and coworkers so they can better understand what you are going through. Spreading the word has allowed us to help other people (RSD affected or not) connect with the vital answers they need. So if you want to tell the world, simply use the form on the "Tell the World" page.

Mentor an Online Support Group
RSD in Motion Kids and Teen groups are two support groups monitored by RSD parents and grown-up RSDers for content and language to protect your kids. This commitment can be as devoted as you would like, ranging from once a week for ten minutes to devoted daily coverage and communication with your group members. If you would like to mentor a group, please email us at rsdinmotion@hotmail.com. Please give us a lengthy description about who you are, why you care about RSD and what RSD is.

More Ten Minute Projects

Post Your Writing
RSD is hard for everyone.  Writing is a good way to vent your anger, frustrations, joy, and anything else that you could possibly think of. We have created a page (Share Your Writing) to post writing from family and friends of RSD patients as well as RSDers themselves.
If you want your writing to appear on rsdinmotion.org, please e-mail Lauren with your writing attached at rsdinmotionIL@hotmail.com.

Most everyone I know keeps a journal or diary with their deepest secrets and feelings hidden somewhere. We are going to start a blog page about an RSD teen girl and what their life is like. This will be about a fictitious girl but we want her blog to be something true and realistic. We want your journal entries, the best, the worst and the worse than the worst. Feel free to edit as needed, no personal information need be known, but we desperately want to give the public an open window into an RSDer's world and think that a unique blog of this kind will help paint that picture. Please help us, so we can help the world. We are interested in journal entries from RSDers of any gender and age. Who knows? If this goes well, we may include a sibling and parens blog so we can better see your side of the street. Please submit entries to Jordan at RSDinMotion@hotmail.com or Lauren at RSDinMotionIL@hotmail.com. Thank you!